WORLD SICKLE CELL DAY: Raising awareness and driving action for a brighter future
World Sickle Cell Day, observed annually on June 19th, is a crucial opportunity to raise awareness about sickle cell disease (SCD) and the challenges faced by those living with it, their families, and caregivers.
This year’s global theme, “Global Action, Local Impact: Empowering Communities for Effective Self-Advocacy,” underscores the importance of community involvement in addressing this significant health issue.
Importance of awareness and action
SCD is a group of inherited red blood cell disorders that primarily affects people of African ancestry, though it can also affect individuals of other ethnicities, including Hispanic-Americans.
In SCD, the red blood cells become hard and sickle-shaped, leading to blockages in blood flow, which causes pain and other serious complications such as infections, acute chest syndrome, and stroke. It is estimated that approximately 100,000 Americans are affected by SCD.
Progress and challenges
World Sickle Cell Day serves as a platform to increase public knowledge and understanding of SCD. It’s a day to shed light on the disease and the struggles experienced by patients and their families. Organizations and communities worldwide host events to celebrate, educate, and advocate for those affected by SCD. These events include awareness campaigns, community gatherings, and educational programs.
How to get involved
Significant progress has been made in SCD research, including the recent approval of gene therapies, which offer the possibility of a cure. However, challenges remain, such as ensuring accessibility and affordability of these treatments. Blood transfusions are a critical treatment for SCD, and the need for compatible blood from donors of the same race or ethnic group highlights the importance of blood donation.
By participating in World Sickle Cell Day, we can collectively work towards a future where individuals with SCD can live healthier and more fulfilling lives.
There are numerous ways to support the sickle cell community. Participating in awareness events, donating blood, and supporting research are all impactful actions. Sharing personal stories and advocating for policy changes can also make a difference.
June 19th is World Sickle Cell Awareness Day.
